X
theAsianparent Logo
theAsianparent Logo
Product GuideSign in
  • Awards
    • Parents' Choice Awards 2023
  • Pregnancy
    • Due date calculator
    • I'm pregnant
    • Trying To Conceive
    • Labour
    • After birth
    • Baby loss
  • Parenting
    • Parent's Guide
    • Relationship & Sex
  • Child
    • Newborn
    • Baby
    • Toddler
    • Pre-Schooler
    • Kid
    • Pre-Teen & Teen
  • Feeding & Nutrition
    • Diseases-Injuries
    • Breastfeeding & Formula
    • Meal Planner
    • Health
    • Allergies & Conditions
    • Vaccinations
  • Education
    • Pre-School
    • Primary School
    • Secondary School
    • Primary School Directory
  • Lifestyle
    • Money
    • Travel & Leisure
    • Fashion
    • Home
    • Fitness
    • Contests & promotions
  • News
    • International
    • Health
    • Celebrity
    • Singapore
  • TAP Recommends
  • Shopping
  • Press Releases
  • Project Sidekicks
  • Community
  • Advertise With Us
  • Contact Us
  • Become A Contributor
  • VIP

These Raw Photos Capture What Life as a NICU Mum Is Really Like

4 min read
These Raw Photos Capture What Life as a NICU Mum Is Really Like

Stephanie with her miracle daughter Adeline who was born 14 weeks early at just one pound and eight ounces (about 680 grams)

After years of infertility treatments that included five failed IUI cycles, one round of IVF, and a miscarriage at 10 weeks, Stephanie Durfee and her husband, John, were thrilled to be expecting a rainbow baby. But just like the couple's road to pregnancy, Adeline's birth story was difficult when she was born 14 weeks early at just one pound and eight ounces (about 680 grams).

After Stephanie developed severe preeclampsia with neurological issues, doctors feared that she would have a stroke if Addie wasn't delivered ASAP.

These Raw Photos Capture What Life as a NICU Mum Is Really Like Source: addie.belle/Instagram

Addie was born three months early and spent nearly the entirety of her first two years in the hospital as well as 114 days in the neonatal intensive care unit with her parents by her side. As this strong little girl has had to fight through surgeries, misdiagnoses, and medical setbacks, her mom wants people to understand what it was actually like during those terrifying first 16 weeks in honor of NICU Awareness Month. 

Stephanie posted this raw photo to show that the NICU isn't just where parents read to babies while waiting for them grow strong enough to take home.

These Raw Photos Capture What Life as a NICU Mum Is Really Like Source: addie.belle/Instagram

To show what the NICU is actually like, Stephanie shared heart-wrenching photos that captured the pain she endured while fearing for Addie's life.

These Raw Photos Capture What Life as a NICU Mum Is Really Like Source: addie.belle/Instagram

In addition to the poignant images, Stephanie recounted on Instagram the moment she received a call from the NICU telling her that she and John needed to pack an overnight bag and get there right away because Addie wasn't doing well. 

"When we got to the NICU, there was a crowd in her corner and the cover was off of her isolette. As we approached, we saw their long faces," Stephanie wrote. "They gave us a look that almost had an air of sorry-for-your-loss. You could see the worry and concern on their faces. This didn't help. This didn't reassure us in any way. Whenever something has gone wrong up to this point, we've been somewhat reassured because they didn't flinch. They didn't seem concerned. This was different."

"She wasn't moving. Barely opened her eyes, and only once."

These Raw Photos Capture What Life as a NICU Mum Is Really Like Source: addie.belle/Instagram

When Stephanie approached, she saw just how "terrible" Addie looked with her usually pink skin taking a "greyish-blue" tone. Addie already had a ventilation tube placed down her throat, and Stephanie saw that her belly stretched so big that it looked like she could see every vein. "It tugged at every string in our hearts," she wrote.

Despite Stephanie's shock over her baby girl's condition, Addie's doctors and nurses told her that she actually looked better than she was.

These Raw Photos Capture What Life as a NICU Mum Is Really Like Source: addie.belle/Instagram

"I"m glad we didn't see her at her worst. I could barely stand seeing her like this," she wrote. "It felt like all of the progress she'd made in the days prior came crumbling down, in an instant."

On this day, Addie was diagnosed with necrotizing enterocolitis, which is a life-threatening condition that causes intestinal tissue to die. "The number one reason why preemies die in the NICU," Stephanie wrote. "She survived ... only 50 percent do."

During this heartbreaking time, John wrote about what it's like to be a NICU dad as the women in his life both fought to be strong while suffering.

These Raw Photos Capture What Life as a NICU Mum Is Really Like Source: addie.belle/Instagram

"Understandably, mama has been so single-minded in her focus on being there for Addie that she forgets to take care of herself. She doesn't slow down. She doesn't let up. She's stubborn. Addie has inherited that stubbornness and I know that's what will get her through her stay in the NICU ..." John wrote on Facebook. "As I've watched her fight, grow, and progress over the last three weeks, I have a feeling in the pit of my stomach, a voice telling me in the back of my brain, that she's going to be OK. And not just OK. She's going to be special. Not just because she's my daughter. Not just because she's a miracle. Just because."

John was right!

These Raw Photos Capture What Life as a NICU Mum Is Really Like Source: addie.belle/Instagram

As this grateful family continues to celebrate how far Addie has come, they hope that sharing their pain will help to raise awareness for other families that are just starting their unthinkable NICU battles

These Raw Photos Capture What Life as a NICU Mum Is Really Like

Partner Stories
4 Good Toilet Hygiene Habits for Kids to Have Early in Life
4 Good Toilet Hygiene Habits for Kids to Have Early in Life
Flu in Singapore: Is Your Family Protected?
Flu in Singapore: Is Your Family Protected?
6 Top Ways to Prevent Diaper Rash
6 Top Ways to Prevent Diaper Rash
Experiencing Mood Swings, Irregular Periods and Weight Gain Among Other Things? Here’s What You Need to Know About Hormonal Imbalance
Experiencing Mood Swings, Irregular Periods and Weight Gain Among Other Things? Here’s What You Need to Know About Hormonal Imbalance

This article was first published on CafeMom. 

Also read: When your baby is in the NICU: A survival guide for parents

Get daily updates about our top stories when you follow us on Telegram at https://t.me/theAsianparentSG.

Got a parenting concern? Read articles or ask away and get instant answers on our app. Download theAsianparent Community on iOS or Android now!

img
Written by

CafeMom

  • Home
  • /
  • Health
  • /
  • These Raw Photos Capture What Life as a NICU Mum Is Really Like
Share:
  • Melissa Koh Shares An Update On Baby Asher Who Is Now In NICU

    Melissa Koh Shares An Update On Baby Asher Who Is Now In NICU

  • Newborn Guide: How to Burp Your Baby

    Newborn Guide: How to Burp Your Baby

  • I Try Tracy Lee's Hack for Egg Tarts and It's So Easy That Even Kids Can Make it

    I Try Tracy Lee's Hack for Egg Tarts and It's So Easy That Even Kids Can Make it

  • 'Family is Priceless': Malaysian Man in Singapore Rents 2 Buses So He and 60 Other Strangers Can Join Their Families for CNY

    'Family is Priceless': Malaysian Man in Singapore Rents 2 Buses So He and 60 Other Strangers Can Join Their Families for CNY

  • Melissa Koh Shares An Update On Baby Asher Who Is Now In NICU

    Melissa Koh Shares An Update On Baby Asher Who Is Now In NICU

  • Newborn Guide: How to Burp Your Baby

    Newborn Guide: How to Burp Your Baby

  • I Try Tracy Lee's Hack for Egg Tarts and It's So Easy That Even Kids Can Make it

    I Try Tracy Lee's Hack for Egg Tarts and It's So Easy That Even Kids Can Make it

  • 'Family is Priceless': Malaysian Man in Singapore Rents 2 Buses So He and 60 Other Strangers Can Join Their Families for CNY

    'Family is Priceless': Malaysian Man in Singapore Rents 2 Buses So He and 60 Other Strangers Can Join Their Families for CNY

Get advice on your pregnancy and growing baby. Sign up for our newsletter
  • Pregnancy
    • Baby
    • Education
    • Events
    • Allergies & Conditions
  • Family Occasions
    • Breastfeeding & Formula
    • Child Safety
    • Health
    • Diseases-Injuries
  • Lifestyle
    • Home
    • Money
    • Feeding & Nutrition
    • Diet & Weightloss
  • Normal Delivery
    • Cesarean Delivery
    • Behaviour
    • Secondary School
    • Formula Feeding
  • Ages & Stages
    • Latching & Concerns
    • Festivals & Holidays
    • Education
    • Pre-teen & Teen
  • More
    • TAP Community
    • Advertise With Us
    • Contact Us
    • Become a Contributor


  • Singapore flag Singapore
  • Thailand flag Thailand
  • Indonesia flag Indonesia
  • Philippines flag Philippines
  • Malaysia flag Malaysia
  • Sri-Lanka flag Sri Lanka
  • India flag India
  • Vietnam flag Vietnam
  • Australia flag Australia
  • Japan flag Japan
  • Nigeria flag Nigeria
  • Kenya flag Kenya
© Copyright theAsianparent 2023. All rights reserved
About Us|Team|Privacy Policy|Terms of Use |Sitemap HTML
  • Tools
  • Articles
  • Feed
  • Poll

We use cookies to ensure you get the best experience. Learn MoreOk, Got it

We use cookies to ensure you get the best experience. Learn MoreOk, Got it

theAsianparent heart icon
We’d like to send you notifications for the latest news and updates on baby care and health.