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Telling Your Children A Parent Is Seriously Ill

8 min read
Telling Your Children A Parent Is Seriously Ill

Dad fighting cancer made a music video set to 'Eye Of The Tiger'

When a parent is seriously ill, the first instinct is almost always to protect the children from knowing. It’s a kind instinct and it doesn’t work.

Children already know something is wrong. They notice the hospital appointments, the whispered calls, the faces of adults who stop talking when they walk in.

What they don’t know is what. So they fill the gap themselves. And what a child invents is almost always worse than the truth, and very often includes the belief that they caused it.

Telling them isn’t the thing that hurts them. Being left outside it is.

How to tell them

  • Use the real word. Cancer, or the actual name of the illness. “Mummy is sick” is worse than it sounds: the child then has no way to tell this apart from a cold, and every ordinary illness in the family becomes frightening.
  • Say it somewhere ordinary and safe, at home, with time afterwards. Not before school, not before bed.
  • Keep it short. A few sentences. They’ll ask for more when they’re ready, and often days later, in the car, out of nowhere.
  • Tell all the children, adjusting the words to their ages. A child who finds out that a sibling was told and they weren’t learns something painful about their place in the family.
  • Expect no reaction. Many children say “okay” and go back to playing. That’s normal processing, not indifference.

What to say explicitly

Children need to hear these in words, because they won’t conclude them on their own.

  1. “This isn’t your fault.” Younger children in particular connect events to their own behaviour, and many silently decide that something they did or said caused it.
  2. “You can’t catch it.” Say this even for illnesses that obviously aren’t contagious. Children don’t know which ones are.
  3. “You’ll always be looked after.” This is the biggest unspoken fear, and it’s a practical one: who takes me to school, who cooks, what happens to me. Answer it concretely.

By age

Age What they need
Under 5 Very concrete and very short. They can’t hold abstraction and don’t yet understand permanence. Expect the same question repeatedly. Answering it the same way each time is the reassurance.
5–8 Literal thinkers, and the age most likely to blame themselves. Be explicit that they didn’t cause it. Watch for regression: bedwetting, clinginess, baby talk.
9–12 They want facts and mechanics, and they’ll search online whether you tell them or not. Much better that they hear it from you first, with the frightening statistics put in context.
Teenagers Honesty, and to be told directly rather than overhear it. They may withdraw, act out, or silently take on far too much of the household. Watch for the last one. It looks like coping.

The hard questions

“Are you going to die?”

Don’t promise what you can’t promise. A promise that’s untrue destroys the child’s trust at the exact moment they need it most.

What works instead is truthful and still bearable: “The doctors are giving her the strongest medicine they have, and they think it has a good chance of working. If that ever changes, I promise I’ll tell you.”

That last sentence is the one that counts. It hands them a guarantee you can keep, and it lets them stop scanning your face for information.

“Will you get it too?” Answer plainly and simply. Don’t go into hereditary risk with a small child.

Getting through the months

  • Protect the routine above almost everything. School, football, the same bedtime. Routine is where children get their sense that the world still holds. This is also why they should keep going to school.
  • Prepare them for what they’ll see. Hair loss, weight change, tiredness, a hospital room with tubes and machines. Described in advance, it’s manageable; unprepared, it’s frightening.
  • Let them visit if they want to, and let them not if they don’t. Either is fine and neither should be pushed.
  • Give them a job. Something small and real: fetching a blanket, choosing a film, making tea. Helplessness is much harder on children than involvement.
  • Let them see you upset, but don’t let them comfort you. Seeing an adult cry teaches that sadness is allowed. Becoming the person who manages your sadness is a weight children shouldn’t carry. That’s what your own support is for.
  • Tell the school. The form teacher and the school counsellor. They’ll read a change in behaviour completely differently if they know.
  • Let them have fun without guilt. Say out loud that it’s fine to laugh, go to a birthday party, and have a good day. Otherwise they police themselves.
  • Keep discipline going. Children who are suddenly allowed to do anything conclude that things must be very bad indeed.

Recordings, letters, and memory boxes

Many parents facing a serious diagnosis want to leave something behind: a video, letters for future birthdays, a box of small objects and stories.

These are good to do, and best done early, while there’s energy for it. They’re also best done with guidance, not alone: hospice and palliative social workers do this work regularly and know what helps a child at five and at fifteen, which aren’t the same thing.

Do it as something shared where possible. A book of family stories made together is easier on everyone than a farewell recorded in secret, and children value the joint version more.

Where to get help in Singapore

  • The medical social worker at the treating hospital. The first call to make. Every restructured hospital has them, they’re used to exactly this question, and there’s no cost.
  • Singapore Cancer Society runs counselling and support services for patients and families.
  • HCA Hospice Care and Assisi Hospice provide family and bereavement support, including for children, and you don’t have to wait until the end of life to ask.
  • The school counsellor, who can support your child during the day when you can’t.
  • Samaritans of Singapore: 1767, or CareText on WhatsApp at 9151 1767, at any hour.

Signs your child needs more support: lasting sleep problems, school refusal, regression that doesn’t settle, frequent stomach aches or headaches with no cause, withdrawal from friends, or a child who has quietly taken over adult responsibilities. That last one is easily mistaken for maturity.

Frequently asked questions

Should I tell my child that I’m seriously ill?

Yes. Children already sense that something is wrong from the appointments, the phone calls and the adults who stop talking when they enter. Without the facts they invent an explanation, and what they invent is almost always worse, and frequently includes the belief that they caused it.

How do I explain a serious illness to a young child?

Use the real name of the illness instead of “sick”, keep it to a few sentences, and say it somewhere ordinary with time afterwards. Then say these things explicitly: it isn’t your fault, you can’t catch it, and you’ll always be looked after. Children won’t conclude those on their own.

What if my child asks whether I’m going to die?

Don’t promise something you can’t keep. A promise that proves untrue costs their trust exactly when they need it. Say that the doctors are giving the strongest treatment they’ve, and add the part that matters most: “if that ever changes, I promise I’ll tell you.”

Should my child visit the hospital?

If they want to. Prepare them for what they’ll see first: tubes, machines, hair loss, weight change. Described in advance it’s manageable, unprepared it’s frightening. A child who doesn’t want to go shouldn’t be pushed.

Should my child keep going to school?

Yes, in almost all cases. Routine is where children get their sense that the world still holds. Tell the form teacher and the school counsellor, so a change in behaviour is read correctly.

Where can families get support in Singapore?

Start with the medical social worker at the treating hospital. Every restructured hospital has one, they handle this regularly, and there’s no cost. Singapore Cancer Society runs counselling and support services, and HCA Hospice Care and Assisi Hospice provide family and bereavement support including for children. The school counsellor helps during the day. In a crisis, call 1767.

What to remember

Tell them, using the real name of the illness. What they imagine is worse than what’s happening, and they often think they caused it.

Say it out loud: not your fault, you can’t catch it, you’ll be looked after.

Protect the routine, tell the school, give them a small job to do, and let them laugh without guilt.

And ask the hospital’s medical social worker for help early. This is precisely what they’re there for.

Read next

  • How to be the parent your child tells things to
  • How parents pass anxiety on without meaning to

This article is general information and not a substitute for professional advice. Ask the medical social worker at your hospital for support tailored to your family. In a crisis, call 1767.

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Roshni Mahtani

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