Four-year-old Evelyn has a condition called osteogenesis imperfecta, also known as brittle bone disease. Find out more about this brave little girl's story here.
Just imagine living in fear that your child’s bones will shatter with a simple fall. This is reality for four-year-old Evelyn Chuah’s mum Cheok Li Ting.
Evelyn reportedly has a condition called osteogenesis imperfecta (OI), also known as brittle bone disease. This is a congenital condition that results in very weak bones, causing them to break easily.
What this means is that little Evelyn can’t run, skip and jump like another child her age. Instead, when in a playground, she has to hold on to her mother’s hands at all times. A simple fall can result in many fractures, landing her in hospital for months.
A shocking diagnosis
According to reports, when Evelyn was born, local doctors were confused by several symptoms she presented. She had a dislocated hip and her right foot was deformed. She could only turn her little head to the left.
When doctors investigated more, they found a healed fracture on her right rib cage — an indication that this bone damage could have only occurred in-utero.
Evelyn was diagnosed with OI type III when she was just nine months old.
Cheok was was shocked about her daughter’s diagnosis. “My first thought when I found out about Evelyn’s condition was that our child was going to be wheelchair-bound for life and that I would have to take care of her 24/7. I was very depressed,” Cheok told star2.com.
However, the little girl, exceeding all expectations, took her first step at the age of two-and-a-half after a year of physical therapy, and now has a body and leg brace fitted into special shoes that helps her walk.
Still, her mobility is restricted by her condition. She can’t go to the bathroom on her own and has to have someone with her at all times while at kindergarten.
Keep reading about this brave little girl on the next page.