The Third Episode
Aleisha with ryles tube
On the 20th of December we had a follow up check up with her Neo-Nate team. Everything was okay at the check up, and so we left for home. I was about 1 minute away from pulling up to my driveway, when I received a call to come back as tests had revealed that Aleisha’s calcium level was low. She had to be checked in again. On 22 December, we were told that her kidney was functioning at less than 10% and she was at stage 5 of Chronic Renal Failure. On 30th December, Aleisha was discharged again.
The Fourth Episode
On August 9, Aleisha was admitted back to HKL due to fever, diarrhea and vomiting. She was very weak. The Dr. give her antibiotic and the rest of her medication and she was discharged on August 13.
The Fifth Episode
Aleisha was admitted again on November 25 with fever and cough. In the ward she became hypothermic. With antibiotic Aleisha was discharged three days later. After the hypothermia, she was not able to suck anymore and I had to insert the ryles tube for feeding.
The Final Episode
For the next couple of months, our princess was okay, when suddenly on Friday, 8th February, she started to have breathing problems. We immediately rushed her to the hospital. As I was standing at the door, Aleisha’s face turned pale and I started screaming!
At 2.15 am, we were transferred from the ER to a Ward with Aleisha on oxygen. After Aleisha had settled down, I asked Steven to go home and get some rest, while I stayed in the hospital with Aleisha.
That night, every time I closed my eyes, my heart would start accelerating and preventing me from sleeping. At around 4.15 am, the medical officer came by and told me that Aleisha was very sick and to be prepared for the worst. She asked “Mummy, are you prepared?” I answered “Whether I am prepared or not is not an issue, if God wants to take her, HE will take her.” .
A few hours later, the specialist on duty came by to see her. After reading her medical history, he asked me if I understood her medical condition. I nodded. He then asked if he should close the curtain. I said no. I was still hoping that Aleisha would get well.
An hour later, a coffee-like discharge started coming out out of her nose and mouth. I panicked and called the specialist. He got the nurse to open the tube so that the discharge would come out from the tube.
At 10.00 am I called Steven and told him to get ready to come to the hospital. At 11.00am the coffee ground discharge came out again from her nose and her mouth and I kept on wiping it. When it did not stop, I called the Doctor. I called Steven again but he did not answer his phone. I kept on wiping Aleisha’s mouth and nose and suddenly I saw the nurse and Dr close the curtain. I went out of Aleisha’s cubicle and waited. I knew something was wrong. I sat there crying and waiting and calling Steven, but again Steven did not answer his phone.
After a few minutes, the Specialist came out and said, “We have tried our best. I am sorry. Time of death was 11.25 am.” My tears were rolling down heavily. I went into her cubicle and saw the nurse was taking out her IV drip. I told the nurse to leave me with Aleisha for few minutes. I held her and kissed her. I told her that I loved her very much and my love for her was unconditional. I read a short prayer for her. I also told the nurse not to wrap Aleisha until Steven arrived. I called Steven again but he did not answer his phone again. I called my father and my father too did not answer. I then called my mother and told her that Aleisha had passed away.
Soon Steven arrived. He saw the curtain was closed and I was crying.He dropped everything that he held and went in. He held Aleisha and read prayers to her. After Steven had his time with Aleisha, I told the nurse to continue their work.
We arrived at my parents’ house about 1.30 PM. Everything was ready. I placed Aleisha’s body on the mattress that my mom had prepared for her. At 2.30 PM I carried Aleisha’s body to the bathroom to bathe her. After that was done, we took her to the mosque. After we finished the prayer, Steven carried Aleisha’s body to the graveyard and the burial was done by 4.00 PM.
Feeling So Lost
Aleisha with her sisters
We arrived home late Saturday night. Just as I was about to go to sleep, I spotted Aleisha’s feeding equipment and my tears started to roll down uncontrollably. Steven was standing beside me and didn’t say a word, but just hugged me. I kept on sobbing until I fell asleep.
Till now, when I have nothing to do, my mind automatically flashes back to the memories I had with her especially the last few days. Everywhere I look, I see Aleisha. It’s painful. Very painful. However life has to go on. Life is short, so to all other parents reading my story, please enjoy every moment that you have with your loved ones.